A Dutch village dubbed "The Truman Show" for dementia patients is getting praise from Alzheimer's experts in the U.S.
The tree-lined streets of Hogewey, a tiny village at the edge of Amsterdam, boast shops, restaurants, a movie theater and a hairdresser. Its 23 apartments are carefully crafted to feel like home to 152 residents.
"Our director compared it to a theater," said Isabel van Zuthem, Hogewey's information officer. "The frontstage is what all the residents experience as a normal way of living, their normal home. But backstage, we are a nursing home. Everything is arranged to give all residents all the care they need. But they feel like they're living a normal life, and that's what we think is very important."
"We wouldn't lie about it, of course. If asked, a staff member would say they're living somewhere where they get the care and support they need," said van Zuthem, adding that most residents will forget the response 15 minutes later. "People with dementia, they go back in time. They live in a different world."
Alzheimer's disease is the most common cause of dementia, affecting 5.4 million Americans. The disease swiftly robs patients of their memories and other brain functions, forcing most to live out their final years in a nursing home.
"Many times, a nursing home is very institutional: nurses walk around in white clothes; people sit together in big rooms to eat meals. We decided that's not how we would like to live when we get old," said Van Zuthem, adding that Hogewey residents are more at ease and need less medication because they feel at home.
While Hogewey has been criticized for creating a fantasy world where nurses pretend to be neighbors, experts say eldercare in the U.S. could benefit from a little improv.
"I'm personally fascinated by the concept of a self-contained village," said Marianne Smith, assistant professor of nursing specializing in dementia care at the University of Iowa. "I don't think it is living out a fantasy as much as it is accommodating the person's desire to live a normal life in a community-like environment. … The program is surely better than the usual nursing homes that can resemble hospitals."
"That's the kindest, most compassionate way to care for them," she said. "The village allows them to do be comfortable where they are, and it plays to their strengths. They can still walk, they can still talk, and they can still be with other people."
But the approach isn't cheap. Hogewey cost roughly $25 million dollars to build. The freedom to walk outside, shop, visit with friends or just relax can make patients happier and less agitated, meaning fewer mood-altering medications.
Hogewey's frontstage-backstage set-up has earned it comparisons to 'The Truman Show," the Jim Carrey movie about a man unknowingly living on an elaborate film set.
Village-Inspired Care: A Game Changer?
Dr. Murali Doraiswamy, chief of biological psychiatry at Duke University Medical Center in Durham, N.C., said the idea could be "a game changer" in Alzheimer's care.
While Hogewey might be the most elaborate village-inspired nursing home, it's not the first. In fact Towsley Village Memory Care Center in Chelsea, Mich., is home to 100 dementia patients living in four distinct neighborhoods, complete with 50s-style coffee shops.
"Facilities in the U.S. have had these villages since the mid-1980s," said Geri Hall, a clinical nurse specialist at the Banner Alzheimer's Institute in Phoenix, Ariz. "The biggest practical challenge is that it requires space and special construction, potentially increasing the cost of care."
But even small-scale adjustments, like having furniture and entertainment from the familiar decades, can help Alzheimer's patients feel more at home. Barton said she wishes there was a place like Hogewey for her aunt, who currently lives in a nursing home in Connecticut.
"I'd love for her to be able to live in a facility like this that would so much more appropriately meet her needs," she said.